Leukodystrophy Australia
SKU
au-2666
'Leukodystrophy' and the related term ‘leukoencephalopathy’ refer to a group of more than thirty genetic, neurological conditions that affect the myelin, or white matter, of the brain and spinal cord.
The conditions are degenerative and typically severe. The majority of those affected by Leukodystrophies are children - there is no cure.
The impacts of Leukodystrophies on families are devastating.
Leukodystrophy Australia (The Australian Leukodystrophy Support Group Inc), is a voluntary, non-profit organisation that helps raise funds to provide counselling, support and information to families and individuals affected by Leukodystrophy.
The group also engages with the medical and scientific community in order to raise awareness and encourage a greater degree of understanding, better diagnosis and research into this devastating group of diseases.
'Leukodystrophy' and the related term ‘leukoencephalopathy’ refer to a group of more than thirty genetic, neurological conditions that affect the myelin, or white matter, of the brain and spinal cord.
The conditions are degenerative and typically severe. The majority of those affected by Leukodystrophies are children - there is no cure.
The impacts of Leukodystrophies on families are devastating.
Leukodystrophy Australia (The Australian Leukodystrophy Support Group Inc), is a voluntary, non-profit organisation that helps raise funds to provide counselling, support and information to families and individuals affected by Leukodystrophy.
The group also engages with the medical and scientific community in order to raise awareness and encourage a greater degree of understanding, better diagnosis and research into this devastating group of diseases.
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